The first National Plan for Rare Diseases in Romania was developed following the partnership signed in 2008 between the Ministry of Health and the Romanian National Alliance for Rare Diseases. It covered the period 2010-2014 and aimed to "improve the quality of life of people affected by rare diseases in Romania through equitable access to early diagnosis, quality treatments and rehabilitation services for people with rare diseases." The National Plan for Rare Diseases for the period 2014-2020 had as its motto "HEALTH IS A FUNDAMENTAL HUMAN RIGHT, WHETHER THE DISEASE IS COMMON OR RARE". It was accepted by the National Council for Rare Diseases and introduced in the National Health Strategy.

In order to have a National Plan for Rare Diseases for the period 2021-2027 to cover the needs of each patient in Romania, affected by any of the rare diseases, Romanian National Alliance for Rare Diseases and National Council for Rare Diseases organized consultation meetings with representatives of Centers of Expertise and patient organizations for rare diseases. Thus, the objectives and priority actions of the proposal of the National Plan for Rare Diseases were defined.

Its purpose is "to improve the quality of life and the degree of autonomy of people affected by rare diseases in Romania through equitable and permanent access to high quality integrated diagnostic, treatment and care services."

The debate of the National Plan for Rare Diseases project within National Council for Rare Diseases will follow after consultations of stakeholders, including the Ministry of Health, National Medicines Agency, Ministry of Labor and Social Protection, National Authority for the Rights of Persons with Disabilities, Children and Adoptions. The final text will be proposed for approval at the Ministry of Health in order to be integrated into the National Health Strategy. 

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